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Frequently
Asked Questions & Troubleshooting Tips
Questions and tips will be added as more services begin
collecting data for PCOC, and as queries are processed.
Questions and tips will be under the broad headings
- clinical and administrative.
Please send all questions to pcoc@uow.edu.au
Is the PCOC data set a National Minimum Data Set?
No. The PCOC data set is designed to be useable and
useful at the clinical and service level and will be
developed by the palliative care sector through the
PCOC Clinical and Scientific Advisory Committee.
A National Minimum Data Set (NMDS) is a minimum set
of data elements agreed for mandatory collection and
reporting at a national level. It includes specified
data elements as well as the scope of the application
of those data elements. Data elements are collected
as an administrative by product from the process of
providing a service. An admitted patient palliative
care national minimum data set does exist. It was developed
by the Australian Institute of Health and Welfare with
involvement from the Palliative Care Intergovernmental
Forum, agreed by the National Health Information Management
Group, and published in 2003 (AIHW Cat. No. HWI 50).
Why do we need to collect RUG-ADL and Karnofsky?
Whilst both have weaknesses recent studies have shown
that they complement each other. RUG-ADL is the best
measure of late loss of function whilst Karnofsky is
not sensitive to change in the 20 to 50 range.
How does my service map a 10 point symptom assessment
scale to the 4 point problem severity scale?
Although a template to which 10 point tools can be
developed and mapped to the 4 point tool, this may not
accurately reflect mapped scores. PCOC is currently working on mapping between a number of assessments, such as the ESAS and SAS, and the Problem Severity Score and SAS.
Can we use our current IT system?
Individual service providers can use any data collection
tool given that the data for PCOC can be extracted and
submitted in the specified format.
What help will my service get to join PCOC?
- Quality Improvement Facilitators will support services preparing
to join PCOC (for example, data mapping, Clinical
Sub-committee involvement);
- Centre for Health Service Development will receive
and manage data from participating sites and create
a database for analysis purposes;
- Centre for Health Service Development will analyse
data and report back to service providers; and
- Quality Improvement Facilitators will work in collaboration with
service providers to identify improvements in service
delivery
Do we need HREC approval?
This is individual for each service provider. The service
provider clinical lead should enquire whether internal
management approval or full HREC approval is required.
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